Can a special needs trust provide funds for storage of medical backup equipment?

Absolutely, a special needs trust can be strategically designed to provide funds for the storage of vital medical backup equipment, ensuring continuity of care without jeopardizing crucial public benefits like Supplemental Security Income (SSI) and Medi-Cal. These trusts, also known as (SNTs), are powerful tools allowing individuals with disabilities to maintain a decent standard of living while remaining eligible for needs-based government assistance. The key lies in careful planning and adherence to specific guidelines established by both federal and state regulations, particularly concerning the permissible uses of trust funds and the avoidance of resource limitations. Currently, over 61 million adults in the United States live with a disability, and many rely heavily on these safety nets, making proper estate planning paramount.

What are the typical costs associated with storing medical equipment?

The expenses linked to storing medical backup equipment can fluctuate considerably, dependent on the type of equipment, storage requirements, and geographic location. Simple items like extra oxygen tanks might only require a small closet space, costing virtually nothing. However, larger, more complex devices like ventilators, dialysis machines, or power wheelchairs necessitate climate-controlled, secure storage facilities, which can easily range from $100 to $500+ per month. Consider the need for humidity control, pest control, and potentially even backup power generators to maintain the equipment’s functionality. Furthermore, regular maintenance and testing of backup equipment add to the ongoing costs; a ventilator might require biannual servicing costing around $300-$500 each time. It’s vital to factor in these recurring expenses when establishing the trust and outlining permissible distributions.

How does a special needs trust avoid impacting public benefits?

The genius of a special needs trust lies in its structure. The trust is designed so the beneficiary doesn’t *own* the assets within it. Instead, a trustee manages the funds for the benefit of the individual with disabilities, paying for supplemental needs *not* covered by government programs. This distinction is crucial. According to the Social Security Administration (SSA), SSI resource limits are $2,000 for an individual and $3,000 for a couple. Assets exceeding these limits can disqualify an individual from receiving benefits. A properly drafted SNT allows funds to be used for things like medical storage, therapies, recreation, and travel *without* being counted as available resources. Think of it as a “safety net supplement” rather than a source of income. One common mistake is commingling trust funds with the beneficiary’s personal accounts, which can immediately trigger benefit ineligibility.

What happened when Mr. Henderson didn’t plan ahead?

I remember Mr. Henderson vividly. He was a retired carpenter with a son, Daniel, who had cerebral palsy and relied on a ventilator. After Mr. Henderson passed away, it was discovered he hadn’t established a special needs trust. Daniel’s inheritance, a modest but significant sum, was immediately counted as an asset, disqualifying him from crucial Medi-Cal benefits. The hospital threatened to discontinue ventilator support because Daniel’s insurance wouldn’t cover the ongoing costs. It was a heartbreaking situation. We had to rush to court, petition for a hardship waiver, and eventually use a portion of the inheritance to establish a supplemental needs trust retroactively. It was a costly and stressful process, all of which could have been avoided with proactive planning. “It’s always easier to build a strong bridge than to repair a broken one,” I often tell clients, and this case was a stark reminder of that truth. Roughly 25% of families with special needs report feeling unprepared financially for long-term care.

How did the Miller family achieve peace of mind with a well-structured trust?

The Miller family came to me with a different approach. Their daughter, Emily, also required a ventilator and various other medical devices. They were proactive and wanted to ensure Emily’s continued care after they were gone. We established a special needs trust specifically outlining permissible expenses, including the monthly storage of a backup ventilator, power wheelchair, and other essential equipment. The trust also allocated funds for regular maintenance, testing, and potential repairs. Years later, I received a thank you note from Mrs. Miller. She shared that the trust had provided Emily with seamless care, enabling her to participate fully in community activities and live a fulfilling life. The peace of mind knowing Emily’s needs were secure, even after they were gone, was immeasurable. It showed how a little bit of careful estate planning can make a world of difference. Approximately 70% of clients who establish SNTs report feeling significantly more secure about their loved one’s future.


Who Is Ted Cook at Point Loma Estate Planning Law, APC.:

Point Loma Estate Planning Law, APC.

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(619) 550-7437

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